04/12/2019 | Press release | Distributed by Public on 04/12/2019 15:17
The Sutter Medical Center, Sacramento Adult Congenital Heart Disease team includes ACHD Medical Director Pei-Hsiu Huang, M.D., right, and ACHD Clinic Coordinator Zilda Crist, left. They are shown with Chelsea Byrnes, who was born with a rare condition and was told she could never have children. She now has given birth twice at Sutter Medical Center, thanks to the advanced care of the ACHD team.
SACRAMENTO, Calif. - In recognition of its expertise in serving adults with congenital heart disease (CHD), Sutter Medical Center, Sacramento earned accreditation from the Adult Congenital Heart Association (ACHA), a nationwide organization focused on connecting patients, family members and healthcare providers to form a community of support and a network of experts with knowledge of CHD.
Individuals with CHD, the most common birth defect diagnosed in one in 100 births, are living longer. There are 1.4 million adults in the U.S. living with one of many different types of congenital heart defects, ranging among simple, moderate and complex.
'We find that patients born with a heart defect who have graduated from the care of a pediatric cardiologist frequently do not continue their care with a cardiologist with specific expertise in treating adults with congenital heart disease, and sometimes do not have a cardiologist at all,' said Pei-Hsiu Huang, M.D., medical director of the Adult Congenital Heart Disease Program and Cardiac Catheterization Laboratory at Sutter Medical Center, Sacramento. 'As Sacramento's first and only adult congenital heart disease program, we are excited to be recognized by the ACHA for providing ACHD patients, many of whom may not otherwise be seeing a cardiologist regularly, the best and most appropriate care.'
Pediatric Heart Surgeon Teimour Nasirov, M.D., left, is a member of the Sutter Medical Center, Sacramento ACHD team. In 2018, Dr. Nasirov repaired RJ Laffins' atrial septal defect, which went undetected for 55 years. Laffins, right, is now winning cycling races thanks to his increased energy after the surgery.
The ACHA accreditation program aims to improve the quality of care ACHD patients receive by introducing standards for the infrastructure and the type of care ACHD programs provide. The Sutter Medical Center, Sacramento Adult Congenital Heart Disease Program received accreditation by meeting ACHA's criteria, which includes medical services and personnel requirements, and going through a rigorous accreditation process, both of which were developed over a number of years through a collaboration with doctors, physician assistants, nurse practitioners, nurses, and ACHD patients.
'There are now more adults than children in the U.S. with CHD,' said Mark Roeder, President and CEO of ACHA. 'Accreditation will elevate the standard of care and have a positive impact on the futures of those living with this disease. Coordination of care is key, and this accreditation program will make care more streamlined for ACHD patients, improving their quality of life.'
There are now 27 ACHA ACHD Accredited programs throughout the United States. The only other programs in California outside the greater Sacramento area that have been accredited are at UCLA and Stanford.
The Sutter Heart & Vascular Institute at Sutter Medical Center, Sacramento provides comprehensive cardiovascular care throughout a patient's life. Specialized multisciplinary teams combine the resources and clinical expertise including high-risk obstetrics services and pediatric cardiovascular program, the comprehensive adult cardiovascular program including the Adult Congenital Heart Disease Program. Pediatric and adult heart disease specialists include board certified cardiologists, cardiovascular surgeons, cardiac anesthesiologists, obstetricians, physician assistants and nurse practitioners, nurses, registered dietitians, financial coordinators, pharmacists and genetic counselors.
About the Adult Congenital Heart Association
The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the more than one million adults with CHD, their families and the medical community-working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and promotion of ACHD research. For more information about ACHA, contact 888-921-ACHA or visit www.ACHAHeart.org.
The ACHA ACHD Accreditation Program was partially funded by Actelion Pharmaceuticals U.S., Inc. ACHA and Actelion Pharmaceuticals have partnered together since 2007 to support the CHD community.
For more information about ACHA, or to schedule an interview with Mark Roeder, please contact Terri Schaefer at 215-849-1260 or [email protected]Posted by Gary Zavoral on Apr 12, 2019 in Cardiac, Innovation, Scroll Images, Sutter Medical Center, Sacramento, Sutter Medical Foundation, Uncategorized | Comments Offon Sutter's Adult Congenital Heart Disease Program First in Area to Receive National Accreditation