02/27/2024 | News release | Distributed by Public on 02/27/2024 05:11
The League of European Research Universities (LERU) has recently made public its position on the proposal for the European Health Data Space (EHDS) new regulation, which is being worked on by the European Parliament and the Council. This regulation aims to provide with rules, common standards, practices, infrastructures and a governing framework for the use of health data. In this sense, LERU, a key agent in research, innovation and higher education in Europe, has sent the legislators a series of recommendations to protect the research carried out at the universities and their hospitals.
The League of European Research Universities (LERU) has recently made public its position on the proposal for the European Health Data Space (EHDS) new regulation, which is being worked on by the European Parliament and the Council. This regulation aims to provide with rules, common standards, practices, infrastructures and a governing framework for the use of health data. In this sense, LERU, a key agent in research, innovation and higher education in Europe, has sent the legislators a series of recommendations to protect the research carried out at the universities and their hospitals.
The regulation aims to focus on two aspects: the primary use of health data, to provide direct individual healthcare to the data subject, and the secondary use of health data in the field of research and innovation. The LERU statement sets out nine key messages:
Rubén Ortiz, Delegate for Data Protection at the UB, has taken part in the creation of the LERU statement.