The Children's Tumor Foundation

03/18/2024 | Press release | Distributed by Public on 03/18/2024 08:18

Stories of NF: Samantha G

I was diagnosed with NF1 at the age of one. The only symptoms I had were a few café au lait spots and I cried constantly (they said that I was in pain, which is why I cried). I was raised on a farm where I had the enjoyment of having many pets from horses, cows, cats, and dogs. As I got older more spots came, as well as neurofibroma tumors. It has also affected my eyes and my learning.

As a person with NF, I live with lots of pain, as well as learning disabilities which makes it hard to find employment. I always wanted to work in childcare most of my life, which I have had a chance to do, but it's time for a change. But I will always be willing to babysit for family and friends.

(My defining moment was at) NF camp, where I realized that there are many people with this disease, and that I am very lucky.

My family and friends make me happy, and I always try to smile and carry a positive attitude.

Favorite Song
This bar by Morgan Wallen

Dream Superpower
Being able to fly, so I never have to pay for gas again

Favorite Food
Well, I have a few, Lasagna or Surprise dip